Non-Profits & University Centers

Non-Profits

• Center for Democracy and Technology (CDT) – The Center for Democracy & Technology is a non-profit public interest organization working to keep the Internet open, innovative, and free. With expertise in law, technology, and policy, CDT seeks practical solutions to enhance free expression and privacy in communications technologies. CDT is dedicated to building consensus among all parties interested in the future of the Internet and other new communications media.
• Privacy Rights Clearinghouse : The Privacy Rights Clearinghouse is a nonprofit consumer information and advocacy organization located in San Diego, CA. It provides practical information about privacy protection to empower consumers to take action to control their personal information. It advocates for consumers’ rights in local, state and federal policy proceedings, including legislative testimony, agency hearings, task forces, and conferences.
• The Privacy Projects (TPP)- TPP is an independent non-profit corporation dedicated to investigating and recommending enhancements to current privacy policies, practices and technologies through research, collaboration and education.
• International Association of Privacy Professionals (IAPP)- The International Association of Privacy Professionals (IAPP) is the world’s largest association of privacy professionals with more than 6,000 members in 50 countries. The IAPP helps to define and support the privacy profession through networking, education and certification. Join today! More information about IAPP membership is available at www.privacyassociation.org.
• From the Internet to the iPod, technologies are transforming our society and empowering us as speakers, citizens, creators, and consumers. When our freedoms in the networked world come under attack, the nonrprofit, member-supported Electronic Frontier Foundation (EFF) is often the first line of defense. Blending the expertise of lawyers, policy analysts, activists, and technologists, EFF achieves significant victories on behalf of consumers and the general public. Specifically in the area of data privacy, EFF fights in the courts and Congress to extend your privacy rights into the digital world, and supports the development of privacy-protecting technologies.
• The Future of Privacy Forum (FPF) is a Washington, DC based think tank that seeks to advance responsible data practices. The forum is led by Internet privacy experts Jules Polonetsky and Christopher Wolf and includes an advisory board comprised of leading figures from industry, academia, law and advocacy groups. FPF was launched in November 2008.
• Electronic Privacy Information Center (EPIC)
• World Privacy Forum
• The Pew Research Center for the People & the Press
• Canadian Association of Professional Access & Privacy Administrators
• TechAmerica: Where the Future Begins – TechAmerica’s Information Security (InfoSec) Committee’s mission is to advocate on behalf of our member companies for public policy, public-private partnership, and global coordination and collaboration efforts that reflect the needs of industry and our customers.  TechAmerica was formed by the merger of AeA, ITAA, GEIA, and the Cyber Security Industry Alliance.
• Center for Digital Democracy (CDD)
• ACLU of Northern California has launched an Internet Privacy Campaign: Demand Your dotRights
• Online Trust Alliance- (OTA) is a member-based organization representing the online trust ecosystem.  OTA promotes business practices and technologies that enhance consumer trust, as well as the vitality of interactive marketing, ecommerce, government and online financial services.   Through our work with regulatory bodies, government agencies, leading businesses, and the technical community, OTA is advancing business and data practices that protect consumers and businesses from increasing levels of cybercrime and deceptive practices.
• Electronic Frontier Foundation – From the Internet to the iPod, technologies are transforming our society and empowering us as speakers, citizens, creators, and consumers. When our freedoms in the networked world come under attack, the non-profit, member-supported Electronic Frontier Foundation (EFF) is often the first line of defense. Blending the expertise of lawyers, policy analysts, activists, and technologists, EFF achieves significant victories on behalf of consumers and the general public. Specifically in the area of data privacy, EFF fights in the courts and Congress to extend your privacy rights into the digital world, and supports the development of privacy-protecting technologies.
• The Indiana Security and Privacy Network (InSPN) facilitates the sharing of security, privacy and data exchange best practices in health care and related industries. The objective of the group is to support collaboration and the sharing of information and knowledge of these best practices and regulatory compliance issues that affect all Indiana industries. Click here for information about joining the InSPN.
• The Carolina Privacy Officials Network (CPON) is an informal group of privacy officials and professionals in North Carolina created to promote the sharing and promotion of privacy knowledge and best practices.  CPON’s members represent law firms and a variety of industries, including health care and research, health insurance, financial services, technology (hardware and software), retail companies, energy, and data aggregation.
• ARMA International is a not-for-profit professional association and the authority on managing records and information.  It is known worldwide for setting standards and best practices, and for providing comprehensive education, publications, and information on the efficient maintenance, retrieval, and preservation of vital information created in public and private organizations in all sectors of the economy.

(CAPAPA)

University Centers

• The Samuelson Law, Technology & Public Policy Clinic at Berkeley Law
• The Berkman Center for Internet and Society at Harvard University
• The Stanford Center for Internet and Society
• Information Law Institute, NYU School of Law
• The Berkeley Center for Law & Technology
• Center on Law and Information Policy, Fordham University
• Institute for Intellectual Property and Information Law, University of Houston Law Center
• The Shidler Center for Law, Commerce & Technology, University of Washington
• Silicon Flatirons: A Center for Law, Technology and Entrepreneurship at the University of Colorado
• Santa Clara Law School’s High Tech Law Institute
• Centre for Information Policy Leadership at Hunton & Williams
• Center for Information Technology Policy at Princeton University
• Center for Information Technology and Privacy Law at the John Marshall Law School

Interesting resources and educational materials provided by nonprofits and University centers on current privacy issues:

Privacy has many dimensions.  For teens with cell phones, “sexting” has privacy implications.  On December 15, 2009, the Pew Internet & American Life Project released “Teens and Sexting: How and why minor teens are sending sexually suggestive nude or nearly nude images via text messaging.”

On November 17, 2009, The Future of Privacy Forum, with Ontario Information and Privacy Commissioner Ann Cavoukian, released a white paper entitled, “SmartPrivacy for the Smart Grid: Embedding Privacy in the Design of Electricity Conservation.”

On October 28, 2009, The Fordham Center on Law and Information Policy released its report  ”Children’s Educational Records and Privacy: A Study of Elementary and Secondary School Reporting Systems.”  The study found that state educational databases across the country ignore key privacy protections for the nation’s K – 12 children.  In particular, sensitive, personalized information related to matters such as teen pregnancies, mental health, and juvenile crime is stored in a manner that violates federal privacy mandates. CLIP reports that at least 32 percent of states warehouse children’s social security numbers; at least 22 percent of states record student pregnancies; and at least 46 percent of the states track mental health, illness, and jail sentences as part of the children’s educational records. Also, almost all states with known programs collect family wealth indicators. Some states outsource the data processing without any restrictions on use or confidentiality for K- 12 children’s information. Access to this information and the disclosure of personal data may occur for decades and follow children well into their adult lives.  Copies and information about the study can be found on the project website:  http://law.fordham.edu/childrensprivacy.

OTA Online Trust Principles.  Reflecting input from over 200 organizations and privacy advocates, the OTA Principles provide a set of core requirements and recommended practices that companies can adopt to increase trust online, primarily through business accountability, data stewardship, and privacy best practices.

CDT’s Guide to Behavioral Advertising

CDT offers an excellent report about how Attorneys General can make a difference for online consumers.

Jules Polonetsky of the Future of Privacy Forum Discusses Smartgrid Privacy Concerns with the Legal Broadcast Network

World Privacy Forum offers Cloud Computing and Privacy

PRC offers Privacy Today: A Review of Current Issues

The Berkeley Center for Law & Technology together with the Annenberg School for Communication at the University of Pennsylvania presents Americans Reject Tailored Advertising: Study Contradicts Claims by Marketers, a consumer privacy study exploring Americans’ opinions about behavioral targeting.  Among other findings, 66 percent of adults said no to tailored ads.  When informed about specific behavioral targeting techniques that marketers employ to create the ads, (techniques including tracking behavior on websites and in retail stores), between 73 and 86 percent opposed tailored advertising.  Released September 30, 2009.

Looking for a privacy event?  Check the Future of Privacy Calendar offered by The Future Privacy Forum listing privacy events Around the Globe.

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